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"WE HAVE CAUGHT A GL
Wha1no 7 1BOK REVIOUSLY K
h,.c rm er .npe a <tril.ethical and lIegd qnestions are rn e2
F irness in the use of genetic information by insurers, employ-
ers, courts, schools, adoption agencies, law enforcement, and the
military, among others. Who should have access and how will it be
used?
Gene therapy which may someday be used to treat, cure, or pre-
vent genetic disorders What is normal and what is a disability or dis-
order, and who decides? Are disabilities diseases? Do they need to
be cured or prevented? Does searching for a cure demean the lives
of individuals presently affected by disabilities?
Commrcilizaionof poducts Issues include property rights
(pstena cprghts, and trad e secrets) and accessibility of data
a -n materials. Who owns genes and other
ieces of DNA?
- ) Y , \J FiN ag)tLaC1lKhi1e
5'~5
It asoire of the rmot rportant senrtific disorer Iisa my belief that te basic knoar ledge that we
es avr, anrd the Unirersiypared a pat nft ae pror drg tar the worldl will ae a profouaad
airsriry Prof. Fraaacis (Cllinrs lead tie aaay tar the.iaaac rt ra the hann coadton and treatmtetts f
requenreing oi the huim anageanoame air lead fI h ds asead.oeneaur r a'5eof ourarplace in the ilogy
Humirana Canoare troject. a.al coantiarruam," eter said.
ColtanashelpedI build the I a - t 'as.geretic Cliana, thourgihacknoeaaledged that there is stll al
departmreat reoa>1984 ato a)9 3, f a ' a e avae Iharat a eorkto be one
ofl absa e obeerae tire =a!caoa oI thei a ae caught a lirpe cf ainastrution ook
?nationral te r lftoa HumIan -i th ca ria Iy n oarnaonly to(od"C ollnsa aid
Natioral Inasttuat li e'lth. a it r a, aa atMeireaelaholtrot. Mticlael NMarett aid thra
aheldI bt a riarer raN r O oarrda. i ahe aeqeae raariaerrillIe iport at to era
ac e "' ~rie5raer ct ac a felro cce
a t ' the ti C raapuba' iahirgoftahegenoamanaaprwill iapaca
it a a,.ia . a a ' s c ri e, a n rrita-r ~ atradiaLi
a a" ee a I rsac. I relr r
a~ta sc Ia> ienaitarLiats rlrs ,a r
ar aphertoucia'.lta re arapi
Ia . I o re' ;arela, ea d ala a p iscl
It a_ 't atbtdeiitpovd il ~ ticaser.
;iah1 te r a y r~et~, a lI aotinrg ab at laca at ll
r c eia c h' eoftheirld.t .._a 'ta s~aaid.
St campate qet n acing igsari expected to be fia-
ied untl 2ttt3, Calhus aid, prior to the 50 year
the oras i- annivrseary cf ie tiriscer ry of the trraCtre*
IMPSE OF AN INSTRUCTION ra il rear DA
NIOWN ONLY To GOD."f ('elirar and Tie finrrsb oi the sequencing has mrany aorried
the Hurman aboutr the effects of making genetic iformratonr
Dr. Francis Collis G e n o ira e aailable to the public.
Director Human Genome Proiet Project had Ornena sad tat eentaually knowing thin type o1
set to finirr iformration about someone may affect insurance
the project rwar 2005, unitil competitionr fromtht~e bio-. rates. costs and aailability as well as employnment
logical technology company Clera Geiomiri forced opporttnitie.
the date to come rooner. "Leir say that air airline pilots gener show that he
Chief Executive Officer offCelera, J.Cfig Venter, will hae Alzeimers diseae. Do his employers
spurred the race asheir he announaced in May of 1998 ae a right to knoaw this as a means of protecting
that he rouldd heat the project's goal date by fire pasengers?" Omen said.
aer. Venter stressed the need for new laws to proPt
Iast rweek thre competition care to an end as the people fromthtleir genetic infornation being tied it
coimpetinrg ides net rwith President Bill ('itntotn in discriminate ways.
Washingon D.C. on Tueday to announce to the "While hose,;ry),b-wfUabase social decisions or
world thrat thebhiuman genomae was approximately 85 genetic redctc~i~rnisreill ultimately be defeated by
percent sectuenced. secree, newvlaws to protect us frotr genetic dir
Cliniotn comapared the accomrplishrmen to whein criaaiaatiear ari critical in order to maimrize the
Thretats Jefferson met asvith Nleriwether Leowis to mredcal betefis fromr getomric discoveries," Veatet
ola at thre first mrap of North NAmerica. sad.
Ban, Cinrtonaraid. "aritlhcact a deoubiithis is tie . - °-- ^--'----"
mrot rimaportanit.raosiaaondreaurarrma erer produced Tioragrte fctre of genaetics nay not be CO
by humanatkind." terer's little qetionth lat the Uniersity aill coti-
Danuriarhi speech. Vcarrer sid tlhat Ie hoped tieca to plar a ker role.
ainfermatiaona aoalalie u, dee therrirrmredial ee- TieLnaersity is hary working eorte Life
ireoicis. Sciences Institate awhch Stephen aster, biologa
prfard memaber of teILife Sciences Ihcnti
Internal Adisory Bard, raid was created with tha
inentionaro imrproinp the presence ad icreasig
Celltieanmber of researchrsa in telife -lnce at tm
'9 ~w ~rx t* f eOt, ~ Lar, C-iery
Se n rts NAThe institutenierllIhare afast-rckd cinitar
miiosome Ili dwihnth' cro focucs tat deparimentsircart no, aster sa idf
F,: s, il te' Td intiite arill enable teULiviersity tofi
Gee s dby o ptrT ther research and become pioneers iniuch fields a
rnGUtfethp r _$ gnetic seqauening.
Ihuhth ' , it Ornerra said the genomte map will be vital to tha
fra merit ar p e6 d "NWe were cocninrgerr the completed genome maa
r I",3'11 C as hen ae created the Life Sciences Institute,"'amena
t o form -n th aid.
-en t code.M p ig-, IUnivrsriy President Lee Bollinger said the lif
Pr tein IS -. W "i? I W S fl. a 1 ciences are an irmporart topic rithin the Cnierity
-Poenlidot furyltl UI ,tr lnd 'Wear - a het of srengih in the life sc
huan bo gy 10 already. W are rvry good, but with considerabl
roorm to improe" Bollinger said.
ma Tre -po-- ,issocanedest Pcs cotribue o this rcaporat
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