100%

Scanned image of the page. Keyboard directions: use + to zoom in, - to zoom out, arrow keys to pan inside the viewer.

Page Options

Share

Something wrong?

Something wrong with this page? Report problem.

Rights / Permissions

The University of Michigan Library provides access to these materials for educational and research purposes. These materials may be under copyright. If you decide to use any of these materials, you are responsible for making your own legal assessment and securing any necessary permission. If you have questions about the collection, please contact the Bentley Historical Library at bentley.ref@umich.edu

April 30, 2004 - Image 50

Resource type:
Text
Publication:
The Detroit Jewish News, 2004-04-30

Disclaimer: Computer generated plain text may have errors. Read more about this.

Benjamin Mooree

A Paint Store and More!

AND

Great Service

Great Products

Try Benjamin Moore's NEW washable, scrubbable, and stain resistant,
ceramic formulated Matte Flat! FREE!!
Bring this ad in for a FREE QUART of Matte Finish in your choice of color.
(1 free quart per customer. Offer expires 5/31/04)

Teknicolors specializes in custom color matching
for the Do It Yourselfer as well as for the Pros.

on rare "Jewish" disease

Teknicolors ... the name you can trust!

.
.w
55
*FE

Birmingham
33422 Woodward Ave. • 248-646-5924

Pontiac
51616 Woodward Ave. • 248-745-0003

12 MILE

Visit us at www.teknicolors.com or at one of our 3 convenient locations

835330

SPORTS COMPLEX

U.S. BLADES

WE'LL THROW YOU A PARTY YOU WON'T SOON FORGET!

We do the work & you have the fun!

• Fabulous Bar/Bat Mitzvah Packages
• Group Outings • Corporate Events • Fund Raisers
• School Parties • Birthday Party Packages
Everything you need under one roof • Book your party today!
5700 DRAKE ROAD (Just S. of Walnut Lake) • 248-661-4200

4 404?

Bring in this ad and receive

of any

Party
10%0FF Package

exp. 5131/04

tre,'

Check us out online at www.usblades.com

4

LOREDCPS

ATHLETIC

CLUB

KICKBOXING, BOXING, AND PERSONAL TRAINING

VIP PASS

BRING IN THIS CARD TO RECEIVE A FREE CLASS AND VIP MEMBERSHIP
DICSOUNTS FOR YOU AND UP TO 3 FRIENDS!

GULL

NOW FOR MORE INFO! (248) 932-5810

6750 ORCHARD LAKE RD. —WEST BLOOMFIELD—LOCATED INSIDE POWERHOUSE GYM

Baby's first pictures

Imagine ... pictures of your baby before it is born.

Now, 3D & 4D Ultrasound Imaging makes it possible.

Call, stop by, or visit our website.

h Baby!

In the West Bloomfield Plaza
Orchard Lake Rd. just south of Maple Rd.
248-855- I 655 www.myfirstpicture.us

-liother' s
Large selection of bags for c—A

• 30 % OFF -

1 week only

(excludes Brighton and Ameri bags)

• FREE Mother's Day Gift Wrap

11B a

248-357-1800

HOURS: 10 am - 5 pm, Mon Sat

29815 Northwestern Hwy. • Applegate Square

CP LIMP FOR P SUBSCRIPTION

4/30

2004

50

Film Quest

A former Detroiter's film spurs research

Call or stop in for information about our
FREE Faux Finish Workshops!

FARMINGTON HILLS
27849 Orchard Lake Rd.
248-994-1300

Health

Teknicolor Paints, Inc.

Paints

248.351.5174

RONELLE GRIER
Special to the Jewish News

see the character move as if it was a

motion picture."

Sasson plans to donate funds from
ticket and soundtrack sales, as well as
other sources, to Jacob's Cure for
research into Canavan, MS, ALS and
Parkinson's.
"My grandparents and parents have all
aimed to instill a lesson of philanthropy
in my brothers and me," said Sasson. "I
have found this project to be more than
a filmic endeavor."

hildren who have Canavan
disease, a genetic neurological
disorder that deteriorates the
white matter (myelin) in the
brain, have an average life expectancy of
3-10 years. Filmmaker and former
Detroiter Stephenie Sasson is hoping to
change that grim statistic with her docu-
mentary As Daylight Breaks, featured in
this year's Lenore Marwil
Jewish Film Festival.
The film focuses on the
challenges of 8-year-old
Jacob Sontag, who has
Canavan Disease, and the
inspiring relationship he has
with his mother, Jordana,
and his stepfather, Gareth
Holovach.
Sasson read about Jacob in
1999 in the New York Times
Magazine. Impressed by the
powerful bond between
Jacob and his mother,
Sasson approached the fami- Jordana Sontag holds 8 year old Jacob.
ly about doing a documen-
tary as part of her under-
As Daylight Breaks has gained the sup-
graduate thesis at New York University.
port of Senator Hillary Rodham and
"I knew right away it would make a
Congresswoman Nita Lowey, who are
great film," said Sasson, "and Jordana
co-chairing an upcoming screening of
agreed to put it into our hands."
the film on Capitol Hill to try to gain
Mrs. Sontag started "Jacob's Cure," a
additional funding for research.
non-profit foundation, to raise money
Like Tay Sachs, Canavan is most
for research on gene therapy and neural
prevalent
among Ashkenazi Jews. Both
stem-cell transplantation. So far, Jacob
parents must be carriers. Now that the
and several other children have achieved
gene has been identified, a simple blood
dramatic results through the use of an
test can determine whether parents have
advanced gene therapy procedure. •
the potential to pass on the disease.
According to his mother, Jacob has
Chaya Leah Tinman of Southfield is
"miraculously" produced new myelin.
all
too familiar with the disease. Her son
His weight and overall strength have
Hershy,
now 16, was diagnosed with it
and
increased, his eyesight has improved,
shortly before his second birthday.
he is now vocalizing to communicate.
"The doctors said he wouldn't live to
Sasson is the daughter of Monica
be 2 years old, but he had been in the
(Minowitz) and Henry Sasson of
hospital for several weeks and we wanted
Bloomfield Hills. She attended Detroit
to bring him home," said Tinman, a
Country Day School, UCLA and the
social
worker and school inclusion coor-
School of the Art Institute of Chicago
dinator
for the Harris Children and
before completing her studies at New
Family Division of JARC. "The day he
York University's Tisch School of the Arts.
"I have always known that I wanted to came home, he smiled, and we knew we

had done the right thing."
be a Filmmaker," said Sasson. As a child
To the best of Tinman's knowledge,
I would make similar drawings in little
Hershy is the only person in Michigan
white notebooks, changing the place-
with
Canavan disease.
ments of the figures only slightly so that
"It's
been a long journey," said Tinman.
when the book would flip, you would

-

-

Back to Top

© 2021 Regents of the University of Michigan