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WALKING TO BREATHE from page 119
though he now uses a motorized
vibrating vest instead of having some-
one pound on him. He's hospitalized
for a week or more every three
months. He's on the list for a double
lung transplant.
"He's just too sick for me to sit back
and do nothing," said Kay. So when
she saw an announcement for the
Great Strides Walk to Cure Cystic
Fibrosis in West Bloomfield on May 6,
she knew she had to get involved.
The result was Team Mart, nearly 90
of Mares family members, friends and
their friends who joined together for the
10-kilometer walk through Drake Sports
Park. The group gathered pledges of
more than 513,000 for LL.-. Cystic
Fibrosis Foundation, which coordinates
the national Great Strides effort.
A Family Affair
"Ninery-one cents of every dollar goes
to research and education," said Kay
of Farmington Hills, who walked with
her husband, Jeff, and daughters
Nicole, 3, and Ashley, 1. Mares father,
Dr. Richard Colman of Bloomfield
Township, and stepfather, Joel Levi of
West Bloomfield, were there, as were
his stepsister Rebecca Goldberg and
stepbrother David Levi, both from
West Bloomfield.
Supporters included 20 students
from Rebecca Goldberg's seventh
grade science class at Covington
Middle School in Birmingham and
Dawn Lamberton of West Bloomfield,
who didn't know Matt or anyone who
knew him. She saw a poster Kay had
hung in the Kroger store at 14 Mile
and Farmington, and signed up just
because she wanted to help.
Others couldn't walk May 6, but
made contributions anyway. One of
Goldberg's students gave her 5250
that he got as bar mitzvah gifts.
Matt's mother, Lynn Levi, was
absent. She is with her son in Los
Angeles, where he's been hospitalized
for more than two weeks. But she
found a Great Strides event happening
the same day in Los Angeles and
walked there. The family talked to her
by cell phone throughout the after-
noon, starring at 1 p.m. as the West
Bloomfield walk was ending and the
Los Angeles walk was beginning.
Other Victims
Several other Jewish families partici-
pated in the walk, inclurling Cherie
and Danny Engelman of West
Bloomfield, whose daughter, Avery
Monet, 2, has CF, and Lori and Dr.
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Standing behind Matt Colman's sister,
Alyssa Kay, are from left, David Levi,
West Bloomfield; Richard Colman,
Bloomfield Township; Rebecca
Goldberg, Vkvest Bloomfield; Jeff Ka);
Farmington
on Hills; and Debbie Firsten,
West Bloomfield.
Steven Roth of West Bloomfield, with
their sons Jacob, 21, Benjamin, 19,
Zachary, 16, and Ari, 6. Ari suffers
from the disease.
Dr. Jeff DeVries of West Bloomfield
walked in support of Ari Roth and in
memory of his wife, Sheri, who had
CF and died after a double lung trans-
plant in December.
As recently as 10 years ago, few peo-
ple with CF lived beyond their teens.
Now, thanks to advances in medical
research and education, many CF suf-
ferers live into their 30s and have
fuller and more comfortable lives.
Kay is hoping a cure will be found
in time to help Matt. "He's a fighter,"
she said. "He's funny, sensitive, bright
and makes everyone happy. He's the
person I most admire because he has
such a drive to go on."
Speaking from his hospital bed in
Los Angeles, Matt said he was
impressed with his sister's effort. "I
never wanted to be a poster child for
anything, but this is a good cause," he
said, adding that Team Matt makes
him feel closer to those back home. "I
never would have asked anyone to do
this, but the fact that they are all out
there to raise money for cystic fibrosis
is really admirable," he said. Eli
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Great Strides walks to cure cystic
fibrosis will be held Saturday, May
19, and Saturday, June 2. A carni-
val will be held Sunday, June 3, at
Congregation Beth Ahm, West
Bloomfield. For information
regarding walk sites, or to make a
donation, call the Cystic Fibrosis
Foundation Metropolitan Detroit
Chapter, (248) 269-8759.
411•111110.-
GROSSE POINTE W. BLOOMFIELD NORTH OAKLAND
882-4870
788-9073
682-9090
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5/11
2001
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