36 | APRIL 27 • 2023 tomized anus — was created by the famed Dr. Alberto Pena of Colorado, who invent- ed this surgery only 40 years ago. Dr. Pena is now over age 80; little Dovid Berman was one of his last patients. Along with this diagnosis, Dovid also has a chromosomal abnormality so rare no studies have been done about it. “He has a whole bunch of ‘smaller things’ going on, ” added Bayla. “Dovid is deaf in one ear, has epilepsy and is very develop- mentally delayed. ” As any parent of a child with special needs can attest, raising such a child is a full-time job and can be emotionally drain- ing. Their calendars are filled with thera- pies, doctors’ appointments and hospital stays, and their hearts beat a different tune, always anticipating the next health scare. “It’s hard, exhausting and, at times, very lonely, ” Bayla said. “People don’t always understand, even when they try … and it can be painful to watch other kids who are the same age as yours, see them do normal things your own child will never do. ” LEARNING FROM DOVID But there’s definitely a flip-side. Dovid’s smile has been known to lift the mood of even the most unsuspecting passerby. He often beams his radiant and wholehearted smile at the congregants of Young Israel of Oak Park, where his family are members, and inevitably ends up spreading good cheer, even without saying a single word. “Dovid is super smiley and extremely social. He loves to play, be around and interact with people. He’s always giving hugs and kisses, ” Bayla said. Dovid’s warmth and positivity is a con- stant source of inspiration for his family and those around him. “He’s always smiling, ” Sruly said. “There are many times he’s smiling when any other kid in the same position would naturally be sad or crying. Not Dovid! He’s always showing me that he can power through any obstacle. ” Big brother Zevy, 8, concurs. “I learn from Dovid that when you work hard, you can do anything. Plus, he’s really fun to look at when he’s happy because he just looks so cute!” When parents have a child with special needs, they sometimes feel they are no longer the same person they once were. They have new priorities and a different perspective. UNPLANNED ADVENTURES “Life does not always go according to plan, ” Bayla said. “My family had to cancel three family trips in the last year alone because of Dovid’s medical emergencies. Dovid has taught me patience. I’ve learned to take whatever life throws at us and just take it one step at a time. ” Actually, the unplanned pivots of life usually wind up being the most memorable. continued on page 38 Sruly and Bayla help big brother Zevy cut Dovid’s hair. The decor with cubed centerpieces of Dovid’s pictures, ABOVE: The adorable cake, courtesy of Dovid’s grandpa. RIGHT: Circus admission cookie and tzizit cookie . continued from page 34