A STANDING OVATION The Arnold family — Philip, Sam, Wendy, Shoshana and Adam — celebrates. A Special I Day Jewish families with special-needs teens “make it work” for their bar or bat mitzvah. MAAYAN JAFFE JNS.ORG t was a day filled with light, joy and hope,” says Adina Levitan, recalling the bar mitzvah of one of her favor- ite Camp HASC students. The New York-based camp, which each summer serves more than 300 children and adults with intellectual and physical disabilities, provides 13-year-old boys with summer birthdays the chance to study for and celebrate their bar mitzvahs on premises. Levitan worked with many of the students, including a young man with Down syndrome whose name she chose not to disclose. She says the man’s counselors helped him prepare for the big day by teaching him to put on tefillin and working with him to say several Jewish blessings. “It was a very special day. His simchah was all of our simchah,” Levitan says. Levitan’s experience is becoming more common, as the Jewish community strives to welcome, include and serve anyone regardless of race, affiliation, ability or dis- ability. Yet a recent poll by RespectAbility and Jerusalem University found that, time and again, the Jewish com- munity still shuts its doors to people with disabilities. According to the study, people with disabilities are dra- matically under-represented within the ranks of engaged continued on page 56 C54 celebrate! • 2017 jn Like most little sisters, Shoshana Arnold loves noth- ing more than to keep up with — or beat — her older brothers Sam and Adam at anything they are doing. Which is why it’s really not surprising that she cel- ebrated her bat mitzvah last year. Shoshana, the daugh- ter of Wendy and Philip Arnold of Farmington Hills, has hypotonic cerebral palsy, which means she has low muscle tone, but it also affects her speech and ability to process information. When her oldest brother, Sam, had his bar mitzvah, tutor Linda Jacobson told Wendy, “Let me know when Adam and Shoshana are ready.” “I was shocked,” Wendy says. “I didn’t know if that was an option and that Linda was able to do it.” It turned out that Jacobson had worked with other special-needs kids in the past. Because Shoshana and Adam are only 10½ months apart in age, their parents asked Adam if it was OK to share his bar mitzvah with his sister. “He thought it would be a good idea,” Wendy says. Shoshana and Adam met with Jacobson for a half hour each, once a week, for 13 months. They also studied with Assistant Cantor Leonard Gutman at their synagogue, Congregation Shaarey Zedek in Southfield, where they both attend religious school. “Philip and I made the decision years ago that we wanted Shoshana to be able to learn whatever the boys were learning,” Wendy says. “I feel like the people at Shaarey Zedek think of my kids as their kids. They’ve grown up there. It’s really one of the only places where I’ll let go of Shoshana’s hand because I know she’s in a safe space. “Plus,” she says, “Cantor Gutman has a relationship with my kids that is beyond anything I could ever hope for. He will come up to Shoshana and give her hugs. He taught her Ashrei.” On the big day, Wendy says, Shoshana read her whole maftir, in trope, and five lines of haftarah with trope. She also led Ashrei by herself, before reciting the closing prayers with her brother. And she received a standing ovation. * —Lynne Konstantin