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„;064„
B10
June 11 • 2009
RARE EPILEPSY
from page B9
children like Allie work with
therapists — physical therapists,
occupational therapists, speech
pathologists and early childhood
educators."
Fortunately for Allie and her
family, the drug Sabril, with the
generic name Vigabatrin, has
helped her become seizure-free.
After only three to four days on
the medication, she stopped hav-
ing spasms. "It's been a lifesaver,"
says Josh, and Jodie calls it call it
her "miracle drug."
At present, this medication is
only available in Canada, so Josh
Jacobs fills her prescription in
neighboring Windsor. In January,
a Food and Drug Administration
advisory committee recommend-
ed Sabril for the treatment of two
epilepsies, including infantile
spasms. Based upon that recom-
mendation, it is hoped the FDA
will approve Sabril soon, making
it available in pharmacies across
the nation.
Physicians also treat infantile
spasms with a hormone called
ACTH, although Dr. Trock pointed
out it can have serious side
effects and is very costly. Children
usually stop having infantile
spasm seizures by the age of 5,
but may experience other types
of seizures.
There is no single cause for the
spasms. It is believed that infan-
tile spasms can have many causes
— a birth injury, metabolic and
genetic disorders. Sometimes no
cause can be identified.
Now almost 2, Allie goes
to the Center for Children's
Rehabilitation in West Bloomfield
twice a week for physical therapy.
Her parents are pleased with the
services offered by the Beaumont
Children's Hospital center. Says
Jodie Jacobs, "Everything has
been so collaborative and well
coordinated among Allie's spe-
cialists. As parents, you want the
best for your child and we feel
good knowing everybody is in
our corner — doctors, nurses
and therapists. We're grateful and
thrilled with her progress."