Health & Fitness All About Helping Organization offers support to families of ill children. Judith Doner Berne Special to the Jewish News A ndrea Gordon wants the Metro Detroit Jewish community, in which she grew up, to know about Chai Lifeline, a national organization that helps families dealing with the serious illness of a child. Gordon, a single mom who lives in suburban Chicago, has experienced firsthand the sup- port of Chai Lifeline's Midwest branch throughout her 15-year- old daughter Ellen's six years of illness. "In 2001, Ellen was diagnosed with lupus and, immediately after, Chai Lifeline entered our lives;' said Gordon, a computer consultant out of Southfield High School with undergraduate and graduate degrees from the "I get so excited once I come to the camp," says Liliya Bromberg, center, of Oak Park. University of Michigan. "They have been with us all the way" Last year, after an adverse reaction to has also helped 30 families in Michigan, hospitals where we have visited, presented medication, Ellen spent nine weeks in a according to regional director Sharon and shared families, Schwartz said. pediatric intensive care unit and six more Schwartz, who travels to the Detroit area "When a child is born or diagnosed weeks at a rehabilitation institute, Gordon with a case worker to meet newly diag- with a serious illness, the entire fam- said. nosed families. ily feels the pain;' Schwartz said. "Chai "When Ellen has been in the hospital, The roster includes families from Lifeline provides crucial emotional, social Chai Lifeline has brought me kosher meals Birmingham, Southfield, Ann Arbor, and financial help that enables the fam- so that I could eat something other than Ypsilanti, Oak Park, Bloomfield Hills, West ily to cope with the crises and long-term hospital food. They have also sent volun- Bloomfield, Waterford and Bay City with repercussions of life-threatening or seri- teers to sleep in Ellen's hospital room so children who either are in crisis or with ous chronic illnesses. that I could go home and know that she major chronic illnesses. They range in age "We feel strongly that when a child is wasn't alone;' Gordon said. from infancy to upper teens. affected, his family, schools and syna- "While the doctors saved Ellen's life, Locally, Beaumont Hospital in Royal gogue are affected;' Schwartz said. "It's not Chai Lifeline saved mine." Oak, Children's Hospital of Michigan and a religious organization, but we do focus Henry Ford Hospital in Detroit, and C.S. on families that are Jewish," she said. Hospital Outreach Mott Children's Hospital and University "We're going to have a Chanukah party, The Midwest branch, based in Chicago, Hospital in Ann Arbor are the primary not a Christmas party, and we're going to About Chai Lifeline Chai Lifeline, a nonprofit organization helping Jewish families, was founded in 1986 in New York by Rabbi Simcha Scholar with the idea of "fighting ill- ness with love." It began with a summer camp for children suffering from cancer. The camp provided resources, staff and an environment designed to meet the young cancer patients' special needs. And it provided their beleaguered families with a needed respite. The response indicated a tremen- dous need for such services all year round, not only for cancer victims but for children suffering from all types of serious illnesses. Today, Chai Lifeline is an interna- tional organization with four regional branches in the United States and associate branch- es in Israel and Europe. All are dedicated to eas- ing the burden of illness on the child and the family. Services, tailored to each family's needs, include providing case manage- ment, medical referrals, psychosocial support and patient advocacy in the hospital to finding a "Big Brother" or "Big Sister" who can form a special one-on-one relationship. Holiday parties, family days, sup- portive weekend retreats and a Disney World trip for children in the throes of their illness and treatment are part of the program. Camp Simcha, for youngsters with cancer and other life- threatening illnesses, plus Camp Simcha Special, for children with serious chronic and genetic illnesses, annually serve 400 seriously ill children. Chai Lifeline provides all services at no cost to its families and operates solely on private donations. As a registered, tax exempt, not-for- profit organization, it holds the top four-star rating from Charity Navigator, which evaluates non-profits on the provide kosher meals:' she said. "No family pays for anything, but there are definitely families that give back." Jewish Connection Chai Lifeline will help any family no matter whether they are secular or reli- gious, Gordon added. "No one has ever said to me, `You must be Orthodox.'" "Every family has its own needs:' Schwartz said. "Chai Lifeline makes every attempt to fill them." With the Gordons, finding a Big Sister for Ellen was a prior- ity "because I only have cats:' Ellen said. For another family, Schwartz said, giving attention to siblings who may be inadvertently shunted aside during the intense time of caring for a critically ill sister or brother may be critical. Arranging tutoring for a child too ill to attend school but well enough to do school work is another one of Chai Lifeline's ser- vices. Medically staffed summer camps and trips to Disney World in Orlando and to Israel are experiences these children could not otherwise have. "They have provided a wonderful camp where Ellen can experience an overnight camping experience without me worrying about her physical or emotional needs:' Chai on page B7 basis of organizational efficiency and capacity. Currently, Chai Lifeline Midwest is seeking people who might be interested in adopting one of their Metro Detroit children or families for Chanukah or in sponsoring a local child on an upcoming February trip to Israel. They also need volunteers to donate time or resources year-round. For more information, contact Midwest Regional Director Sharon Schwartz at (847) 763-1818 or Midwest@chailifeline.org , or visit the organization's Web site at www.chailifeline.org . - Information provided by Chai Lifeline January 17 . 2008 B5