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SHELLI LIEBMAN DORFMAN
StaffWriter

I

n February, Lisa and Adam Ziff of
West Bloomfield placed a birth
announcement for their newborn
daughter in the Jewish News.
Never could they have imagined the
next time tiny Shay Celia's name would
be in the paper would be as part of an
agonizing plea for her life.
Diagnosed with restrictive cardiomy-
opathy, 13-week-old Shay needs a heart
transplant or she will die. "Shay was sick
from the time she was born," Adam said.
"It was heart-wrenching to watch our
little baby girl have trouble breathing
and in pain," the Ziffs wrote in a letter
posted on the International Association
of Organ Donation (IAOD) Web site.
Shay was hospitalized many times over
the next two months, following breath-
ing, eating and sleeping difficulties.

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It is important for those who have
indicated wishes to be an organ
donor — through a will, document
of gift or driver's license — to also
to register with Michigan's Organ
and Tissue Donor Registry.
To register online to become an
organ donor, access the IAOD Web
site at: wwwiaod.org
For information on registering to
be a donor, call the IAOD at (313)
745-2235, or call LINOS at (804)
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at: wwwunos.org
To order Organ and Tissue
Donor Registry brochures, call Gift
of Life Michigan, (800) 482-4881,
e-mail: info@giftoflifemichigan.org
To be in touch with the Ziff fam-
ily, e-mail Shelli Liebman Dorfinan
at: sdorfman@thejewishnews.com

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Eventually going
into heart failure,
she- was airlifted to
the University of
Michigan C.S.
Mott Children's
Hospital in Ann
Arbor, where she
is on a ventilator.
"Our little baby Shay Ziff
was in a helicopter
fighting for her life without her parents,
as there is no room for non-medical per-
sonnel," wrote the Ziffs.
After Shay had open-heart surgery and
a heart catheterization, the Ziff's letter
read, "We learned the most devastating
news of our lives. We were told that
without a heart transplant, our baby girl
will die." Then Shay's name was placed
on the organ donor list.
"We know that Shay's eventual gift
will be the result of pain and anguish of
other loving parents," the Ziffs wrote on
the IAOD Web site.
The couple have become advocates for
organ donor awareness, sending 2,500
letters to physician around the country
and countless e-mails describing Shay's
condition. They have printed and dis-
tributed "Donate Life" T-shirts.
"We now wait every day for news,
hoping that a heart becomes available
before Shay's disease takes over her
body," the IAOD letter read. ❑

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