COMMUNITY VIEWS A Personal Note From A Grieving Parent reached out to us with personal notes t has taken me a long time to and contributions. We were extremely put words to paper, but I felt impressed and touched by these ges- compelled to write a follow-up tures. On the other hand, there were to my Canavan Disease article people who crawled into the wood- of Feb. 25 ("A Simple Test For Ashke- work to hide. We do under- nazim"). stand that death makes peo- No, our son did not have ple uncomfortable. There is Canavan Disease; however, he a loss of words when it died at birth on May 21 from comes to tragedy, let alone unknown causes. My hus- the worst possible: the death band and I have been corn- of a child. However, those pletely devastated by the people's silence brought us death of our son. It has been additional pain, as if our difficult to find meaning in a loss was insignificant. world that is so unfair. But every day we heal a CLAI RE How To Help bit more; every day we get As a bereaved parent, I feel GRO P MAN less angry. Perhaps through it is necessary to communi- Spec ial to this article I can share my cate what is needed during ish News the Jew experience and help others these painful times, in order learn about how to care for to give others insight into the bereaved. Maybe, in some supporting the grieving process small way, we can pay tribute to our instead of compounding the hurt. beloved baby Jack, whom we love with I didn't need flowers; I needed all our hearts. phone calls and hugs. I didn't need I have to say people's responses to plants; I needed people to bring din- our tragedy have surprised us in many ner, clean my house, mow the lawn. I ways. Numerous people, including didn't need empty offers of assistance; strangers, came out of the woodwork I needed people to tell me what they to express their condolences and give could do and when. I didn't need contributions. People whom we had silence; I needed any acknowledge- only met once during my pregnancy ment that our son had briefly lived on this earth. I didn't need people to tell me it was beshert [intended] that my Claire Gropman is a Farmington Hills son was dead; I needed people to tell psychotherapist certified in grief counsel- me that it was okay to be as angry as ing who now specializes in pregnancy and infant loss. She can be reached at hell. I also didn't need people to tell me (248) 203-1770. I that my son "was not meant to be;" I needed people to tell me we were cheated out of a beautiful baby boy and we would have been great parents. I didn't need people to tell me that "you're young and will have other chil- As a bereaved parent, I feel it is necessary to communicate what is needed during these painful times .. . to give others insight .. . dren;" I needed people to tell me Jack was special and he will be deeply missed and can never be replaced. I didn't need people to tell me "there is a reason for this;" I needed people to acknowledge in any way that we have broken hearts and broken dreams. Believe it or not, people actually said all of those things. I know that I am young and will hopefully some day have other children, but this did not help me feel less devastated about Jack's death. I understand that some people don't know what to say. So let this be some sort of a guide to saying or doing the right things. Still, doing anything is better than doing nothing. It's not "better late than never." I needed a call or card at the time, not months later. But a hand on the shoulder and an "I am sorry" is good enough. People need to think about the feelings of the bereaved and not their own comfort zone. All of the statements listed above were words to help them feel better about an infant's death, not me. However, the majority of our friends and family were there for us, and for that we are truly grateful. We feel blessed to live in this loving Jew- ish community. You really do find out the true character of people in times of need and it has been quite a learn- ing experience. We have taken com- fort and refuge in the people who love us and in our love for each other. We think about Jack all the time and miss him with every ounce of our being. Whenever possible, we show the few pictures of him that we have to anyone willing to see them. Our hearts are healing and we will never be the same, but we don't want to. Jack lived inside me for 39 weeks, on this earth for a few short minutes and in our souls and minds forever. ❑ Lieberman Not Off Base It pains me to see how voters are being subjugated by a massive influx of sub- tle propaganda. Let me explain the difference between a belief and a practice of a religion. If you state, "This is my belief," no one can ask any more of you. However, if you are purporting a practice of a religion, then anybody and everybody can tell you how to act. Christianity has many divisions. The world differentiates between Catholics and Protestants, even though both believe in Jesus. We Jews distinguish ourselves by the degree of adherence to the traditions. What needs to be understood is the 9/15 2000 84 Sta ff pho to by Kris ta Hma LETTERS Jews should be proud difference between that the only way the Sen. Joe Lieberman's media and politicians expression in God can criticize Joe when giving thanks Lieberman is because and a belief in a reli- he says, "My ethics gious denomination and conduct is con- ("On A Wing And A trolled by my belief in Prayer," Sept. 1, page a supreme being." All 19). He asks no one to modern law is based follow his direction. on the Judeo-Christ- However, Christians ian foundation in the worry about the sepa- Ten Commandments. ration of church and Sen. Lieberman at Fellowship Civilization is the state because they are Chapel in Detroit Aug. 27. result of incorporating often intent on estab- these commandments lishing a unified into daily behavior. Self-deprecation is church. nothing new for Jews. It is a part of Beware, the criticism of Joe Lieber- our tradition. man is often a veiled antisemitism Comedian Jackie Mason has a bit smokescreen; the same as, "Some of about his humor being too Jewish. my best friends are ..." Jewish humor is loaded with jokes about not arousing hatred in bigots. The Anti-Defamation League does not speak for the majority of Jews. It, too, is confusing a "thanks" to a supreme God with a practice of a reli- gion. The ADL is a self-appointed group that limits its existence to detecting anti- semitic responses. It should first look within its own ranks. Jewish anti- semitism often comes from an attempt to placate the antisemites or be political- ly correct. That world will never love us. Thank God, there is a celebrity who understands that he is not the center of the universe and gives credit or thanks to others. This letter comes from a lifelong Republican! Dr. Alvin Pensler Napa, Calif