Se Zilide uberty and the pre-teen person that I have seizures and years were especially dif- not to freak out. I don't mind if ficult for Scott Becker. A they ask me questions and want year before his bar mitz- to know more. The more they vah, he was diagnosed as know the more they'll be able to having epilepsy. help me." "This was not a fun time," re- Epilepsy affects almost one calls Mr. Becker, now 28. "I was percent of the population of the isolated and didn't understand United States. It is a brain dis- completely what was happen- order causing unpredictable, un- ing. I was absent from school a controlled seizures that can lot and it was difficult to make occur at any time. Seizures re- friends. It only got a little bit bet- sult when the normal, tightly ter as a teen when I met a bunch controlled electrical activity of of guys in B'nai B'rith. They the brain becomes excessive and came to understand what I was jumbled, interrupting normal experiencing and supported me. brain activities. "What I discovered growing Doctors do not make the di- up is that I couldn't allow epilep- agnosis of epilepsy based on a sy to finish my life," says Mr. single episode. A person is di- Becker. "I can't let it beat me; agnosed with epilepsy only after I've got to beat it. I need to keep recurrent seizures. Sometimes pushing forward but sometimes the causes are known; other it's extremely hard and I need times unknown. help. For the past few years Scott "When I develop a friendship Becker lived by himself in Madi- that's important to me, I tell that son Heights and was a student New research is making giant strides in the diagnosis and treatment of epilepsy. RUTHAN BRODSKY SPECIAL TO THE JEWISH NEWS PHOTOS BY DANIEL LIPPITT Fear of at Wayne State University working on a degree in thera- peutic recreation. This summer he's a counselor at Camp Airy in Maryland for Jewish boys ages 6 to 17. After camp, he plans to return to his parent's home in Bethes- da, Md. and find out if he's a good candid ate for brain surgery at Johns Hopkins Medical Cen- ter. Unfortunately, medications developed within the last five years to treat epilepsy did not work completely for Scott Becker. According to neurologist Rob- ert Spitzer, M.D., clinical asso- ciate professor of neurology at Wayne State and adjunct pro- fessor in electrical and comput- er engineering, with the series of new medications, 70-80 per- cent of patients with epilepsy achieve 100 percent seizure con- trol. Dr. Robert Spitzer: Patients don't want to hear the diagnosis. An EEG machine measures a patient's brain waves. "However, there is a tremen- the stigma of seizures in school dous difference between being is not easy." 99.99 percent seizure controlled Seizures take many different and 100 percent controlled," says forms, lasting from a few sec- Dr. Spitzer who practices at onds to several minutes. Some Beaumont Hospital in Royal cause the entire body to con- Oak. "If a patient isn't 100 per- vulse; others simply resemble cent controlled, there is always day dreaming or the movement the chance of a seizure. of one limb. "Scott had one or two seizures The first drug used to treat last year and he was devastat- epilepsy, in 1912, was pheno- ed. He was afraid to be in pub- barbital. It provided some relief lic, he can't drive, and he is and is still used today although constantly depending on others. patients become very tired while His life is a mess. using it and it interacts with "Epilepsy can begin in adult- other medications. In 1939, hood, but like Scott's 'case, it phenytoin (Dilantin) was dis- Most often appears for the first covered and considered the ma- time in children and young jor breakthrough for controlling adults. Growing up with the seizures. It worked, well bring- condition profoundly affects a ing complete seizure control to person's psychological and emo- tional well-being. Coping with FEAR page 74 0) 0) 3- LLJ 73