5 ■ HealthNews FALL 1995 ISSUE ■ SINAI HOSPITAL New Diagnosis and Referral Clinic for Autoimmune Diseases magine the following scenario. You have been feeling lousy for a long time. Your family and friends have gotten tired of hearing your minor complaints about not feeling well. You final- ly drag yourself to a doctor with a list of symptoms that are vague, in- consistent, and sound so trivial. But the fact is you feel awful. Unfortunately, the doctor finds nothing specifically wrong with you. After some time passes and you still don't feel better, you go to another doctor, who may send you to still others, and yet nothing is found to be wrong. Maybe some- one adds insult to injury by saying that it is all in your head. You can spend years (not to men- tion thousands of dollars) search- ing for someone to find out what is making you feel this way. You probably can't even remember when you didn't feel poorly. There is a possibility that you have an autoimmune disorder. Autoimmune diseases are a fam- ily of about 80 diseases — some are very obvious and can easily be diagnosed, some are very vague and obscure. A person's immune system works to eliminate dangerous ma- terials which enter the body, such as bacteria and viruses. When an autoimmune disease occurs, the immune system responds in an equally hostile manner to some tis- sue in the person's body, causing inflammation and cellular de- struction. This can result within different areas of the body, with dif- ferent symptoms associated with the damage. There are varying theories as to what causes the immune system to be sensitive to the person's par- ticular tissues. Regardless of the cause, the effects can range from nuisance symptoms to devastating, even deadly, situations. Until a di- agnosis is made, treatment is lim- ited to symptoms and may be misdirected. Sinai, in collaboration with the American Autoimmune Related Diseases Association, has estab- "Our diagnosis and referral clinic should minimize the frustration for people searching for answers," says Steven Rabinowe, MD, chairman of Sinai's Department of Medicine. lished an autoimmune diagnosis and referral clinic. Rather than go- ing from specialist to specialist, thereby missing the big picture, a patient can be evaluated to deter- mine whether an autoimmune dis- ease or syndrome exists. After a diagnosis is made, the patient can then be referred to the appropriate physician or clinic for specialized care and treatment. According to Steven Rabinowe, MD, chairman of Sinai's Depart- ment of Medicine, "A thoughtful standardized approach to patients with autoimmune illness has been needed for a long time. These dis- eases cross standard medical spe- cialty lines, and patients have been having difficulty with the medical system. Sinai hopes that this new approach will provide improved services for patients with autoim- mime diseases." Research suggests that autoim- munity clusters in families. Hone family member has an autoim- mune disease, it is not unusual that other family members do too. For example, former President George Bush and his wife, Barbara, both have Graves' disease; and their son Marvin has Crohn's disease. This lack of knowledge and collabora- tive effort in the traditional med- ical community can result in untold suffering for people with these ill- nesses due to misdiagnosis and de- layed diagnosis. Medical advances have benefit- ed patients with many of the au- toimmune diseases, such as lupus, type I diabetes, and rheumatoid arthritis. These advances have brought about better treatments and increased life expectancy. The greatest cause of death in autoim- mune diseases is lack of early di- agnosis. Therefore, this new diagnostic and referral clinic can make a physical, mental, and financial difference in the lives of patients with autoimmune diseases. For referral to one of Sinai's clinics, call SinaiSource at 1-800- 248-3627. nflammatory Bowel Disease (IBD) is a collective term that covers a number of inflammatory disorders of the gastroin- testinal tract, including Crohn's disease and ulcerative colitis. The Autoimmune Diagnosis and Referral Clinic would identify these problems and refer the patients to the Inflammatory Bowel Disease Center. "IBD does not have to be debilitating if patients are well cared for," says Jason Bodzin, MD, the center's director. "This is a new facility where a significant number of medical and paramedical professionals come together to provide treatment and support for IBD patients, most of whom have had a hard time finding a group like this to help them " Dr. Bodzin said. ,