Me Brink Of Sorrow Hardships are not dead ends, survivors of illnesses say. AMY OPPER SPECIAL TO THE JEWISH NEWS man resorted to getting around her house in a small automat- ed vehicle. She refused to grow frustrated. "I had to find a reason for liv- ing," she says. Setting her sights on educa- tion, Ms. Pearlman volunteered within the schools and became the Berkley Parent-Teacher As- sociation's "Mother of the Year" in 1980. Today, as an elementary school tutor, she utilizes the same creative problem-solving approach she implemented with her son and herself. "Every child is different and is going to respond to a differ- ent teaching technique," she says. Still, the pain of MS always lurks in the background. "That's why it's even more important to focus on other peo- ple," she explains. "Concen- trating on myself and whatever pain I'm feeling won't accom- plish anything ... If you're suf- fering and you really want to help yourself, do something for someone else. Don't let an ill- ness stop you." Bloomfield Hills resident Tillie Mossman acknowledges the difficulties that sometimes arise. After losing the majori- ty of her sight to macular de- generation, Ms. Mossman says her actions have become limit- ed. Though she probably will never completely lose her sight, Ms. Mossman's vision has been reduced so significantly that only blurry forms are evident to her. "I used to play cards. I used to read. I loved being with peo- ple," she says. "I've lost that." Ms. Mossman also was an avid knitter. She designed sweaters and afghans for friends and sewed baby bibs for her grandchildren and later on for Sinai Hospital. After her diagnosis, Ms. Mossman never considered counseling. _ "Maybe I'm too independent. Whether I was right or wrong, I don't know. But I never did it," she says. "I knew what I had to know — that I had to go on liv- ing. I didn't want to simply ex- ist." But, the hobbies that she had once enjoyed so much now seemed impossible for her. Not- ing her boredom, a friend sug- gested that Ms. Mossman resume knitting. She was skeptical at first. Ul- timately, though, it was knit- ting that began to fill her days. "You never forget how," she says. "You just rely on feel." From the yarn brought to her, Ms. Mossman now creates vivid afghans in an array of col- ors. She is quick to credit the people who request her services. "It's a mitzvah for them to ask me to knit," she says. "They know that it keeps me busy." In addition to knitting, Ms. Mossman listens to books-on- tape and to the daily news. "There's still a world out there, whether I see it or not. I just can't bury myself in a hole," she says. Ms. Mossman notes that peo- ple who are ill miss different as- pects of their former lives. "No matter how many times you tell someone that they should be able to accomplish more than they presently ac- complish, it may never sink in," she says. "When people are sick or in pain, it is very difficult for them to understand that they're not the only ones with the prob- lem." Ms. Mossman has round-the- clock assistance with cooking, laundry and transportation — "Everything I'd like to be doing myself," she says. "But you just have to accept how it is. There's mail to open, bills to pay. I have a bookkeeper who comes twice a month because I can no longer see the bills." Sinai's Linda Diaz, with the cancer counseling program, says Ms. Mossman raises a valuable point. "It's helpful for fam- ilies to realize that pa- tients may look perfectly fine, but in- side they're healing— and it may take a long time for them to heal," Ms. Diaz says. She also points out that families of pa- tients may urge pa- tients to overcome illness as quickly as possible, to leave the sickbed and return to a "normal" life. They should be sensitive, however, to the amount of time it might take patients to acclimate them- selves to the life they once knew. Certain hobbies might spark pa- tients' interest, Ms. Diaz says, and fam- ilies should coax pa- tients out of depression and back to daily activ- ities. Rehabilitation is an ideal opportuni- ty to become in- volved with art or music, pastimes a patient probably didn't have time for before the ill- ness. Keeping a journal, though, can become the most precious undertaking. "You tend to forget where you were emotionally during both sickness and rehabilitation," she says, explaining that some memories might become hazy and that journals provide an ac- curate record of the illness. "Journals help to determine what was fantasy and what was reality during that time," Ms. Diaz says. Most importantly, she advis- es patients that their families should enter into a counseling program. "Counseling allows you to confront feelings you may not have even realized you had," she says. "It helps to get the negativity out." Keeping a sense of self, Ms. Diaz continues, is a critical part of recovery. "It's important to realize that being sick is only a part of life. There's a lot more out there," she says. "Having an illness doesn't define who you are." 1:1 PHOTOS BY GLENN TRIEST a) C) C:f) CC UJ ao LLI F- Rebecca Pearlman: "I had to find a reason for living." U_I 31