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October 15, 1993 - Image 12

Resource type:
Text
Publication:
The Detroit Jewish News, 1993-10-15

Disclaimer: Computer generated plain text may have errors. Read more about this.

Cauley Cars
=FASO...
Go
That's Because They're

CANAVAN page 1

Priced To Move!

94 LUMINA
MINI VAN

Stk. #T75

,

2

4
0 Month

:;;:j=m0
-ft-





$2990 Lease

4 Wheel, ABS Airbag, Loaded!

'94 BLAZER LT
4X4 4 DOOR

Stk. #T121

X3190°

LEATHER



Month
Lease

'

4 Wheel, ABS, Loaded!

'94 PRIZM
SEDAN

Stk. #57

$ 229 00:gth
Lease

4 Wheel, ABS Air, Stereo Cassette, Auto.,
Plus Much More!

'94 CAVALIER
COUPE *
24
$ 199 °° Month
Lease

Stk. #129

4 Wheel, ABS Driver & Passenger Air Bag, Air, Stereo,
Auto., Plus Much More!

Cauley
Jack
-
...eidneseeievvzinev
CCP CHEVROLET Geo

ORCHARD LAKE RD.

Between 14 Mile & 15 Mile

855-9700

HOURS: Mon. & Thurs. 8:30 a.m.-9 p.m., Tues., Wed., Fri. 8:30 a.m.-6 p.m.

* GMAC SMATLEASE
APPROVED CREDIT REQUIRED, 15,000 MI. PER YEAR 30,000 MI. TOTAL ALLOWED 00.10 PER MILE OVER 30,000 MI. MUST ADD 4% USE
R
PLATE AND $1,000.00 CAP. COST REDUCTION. TOTAL OF PAYMENTS X 24. OPTION TO PURCHASE AT END OF LEASE, LESSEE RESPONSIBLE
TAX, LICENSE
FOR EXCESS WEAR AND TEAR.
** Requires Ameritech activation through our dealership.

Hershey's sisters read to him.

causes Canavan's.
The discovery will simplify
both prenatal and carrier test-
ing.
Dr. Reuben Matalon, of the
Miami Children's Hospital, just
announced that he has found a
common gene in 92 percent of
the Canavan cases he has stud-
ied. Following further research,
he will prepare a blood test to
identify carriers.
A test for Canavan does ex-
ist, but requires a skin biopsy,
a minor surgical procedure that
is both lengthy and costly.
Though the news about the
gene discovery won't make a
difference in the life of Hershey
Tinman, his parents are no less
joyful at the discovery.
"What's important to us is
that people learn about this dis-
ease," Mrs. Tinman said.
The Tinmans originally be-
lieved that Hershey, now 5, had
Tay-Sachs, also a brain disor-
der which affects mostly
Ashkenazi Jews. He was
checked for Tay-Sachs "and
took a slew of other tests," Mrs.
Tinman says. "But everything
was negative."
Then a friend mentioned a
relative of hers who had simi-
lar symptoms and had been di-
agnosed with Canavan disease,
a genetic mutation that de-
stroys myelin, the insulation
around nerve cells (Canavan
falls into the leukodystrophy
family, a form of which struck
the boy in Lorenzo's Oil.)
The Tinmans took Hershey
in for a skin biopsy. Three
months later the test came back
positive for Canavan.
Both parents must be carri-
ers of the disease for it to pass
on to the child, who has a one
in four chance of being born
with the disorder.
One of two families in
Michigan with a Canavan child
(the other family is gentile), the
Tinmans immediately orga-
nized their lives — without a
touch of hesitation or resent-
ment — to accommodate their
son.
In came the oxygen. In came
the nurses (who work 12 hours
a day, seven days a week). In
came the wheelchair-accessible
ramps. And into his parents'

room went Hershey, who re-
quires 24-hour-a-day care.
Like other children with
Canavan, Hershey can do vir-
tually nothing for himself.
Physicians do not know the ex-
tent of his mental abilities, but
he has almost no control over '–
his body. Even his food comes
through a tube. Hershey's one
form of communication is blink-
ing to respond "yes" or "no,"
though his parents are now
teaching him to use a comput-
er. (By pulling one string, he
can hear a favorite story; by
pulling another, he'll hear a
song.)
Canavan children also are --
prime candidates for pneumo-
nia and other illnesses. Because
of constant medications and a
weakened immune system, a
small cold, if untreated, can
bring death. The Tinmans have
spent more than their share of
nights in the emergency room.
"He always comes back,
though," Mrs. Tinman says.
"He's just a little fighter."
The Tinmans do not want
anyone to think their lives are
in any way reduced because of
Hershey. They take him to
summer concerts in the park.
He is popular with his teachers
at Wing Lake School, who call
him "Chuckles" because he
loves to laugh. They make cer-
tain he gets to see his favorite
movie, Bambi, as often as posji
sible. "When there's a shul pic-
nic, Hershey is right there," his
mother said.
In fact, the Tinmans have
found their own religious con-
victions and daily existence en-
hanced by the presence of their
son.
"There are so many people
who have it worse," M-.,
Tinmansays. "Hershey has no
mental anguish. I have a friend
whose young son has a rare
form of cancer, and he knows
he's dying. To see your child
wither in front of you...that
would be much more difficult."
"HaShem (God) isn't playing
some joke on us," Mrs. Tillman
added. "He knows what he's do-
ing by giving us Hershey, and
we are grateful for every day.
We have been blessed to have
him."



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