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New York (JTA) — When
Orren and Seth Gelblum
learned that their 2-year-old
daughter, Morgan, suffered
from incurable and fatal
Canavan disease, they
decided to do something
about it.
Though little can be done
for Morgan, since there is no
existing treatment or cure,
her family and friends
founded the non-profit
Canavan Foundation in New
York to raise money for sup-
port of research into the
disease.
Canavan's is an incurable
genetic disease found
primarily in Jewish children
whose ancestors emigrated
from Poland, Russia or
Lithuania.
Much like the better-
known Tay-Sachs disease,
Canavan's occurs when both
parents carry the defective
gene and pass it on to their
child.
Initial research, according
to the Canavan Foundation,
indicates that as many as
one in every 30 descendants
of Eastern European Jews
may be carriers of the defec-
tive gene.
It is hoped the study of
Canavan disease will
hopefully result in a preven-
tion of the ailment and at
least will serve to educate
the medical world and the
general public about the
condition.
The disease, also known as
"spongy degeneration of the
brain," prevents its victims
from ever being able to hold
up their heads, perform the
simplest task with their
hands, sit, crawl, walk or
speak.
Children with Canavan's
are severely physically han-
dicapped, profoundly men-
tally retarded and have a
very limited life expectancy.
The foundation is initially
focused on promoting
research to develop simple
and accurate tests that will
definitively determine the
carrier status of parents and
the presence of Canavan's in
the fetus of carrier parents.
Once accurate tests are
available, the foundation
will support an education
and screening program.
Canavan's often goes un-
diagnosed because neither
the Jewish community nor
the general medical com-
munity has been sufficiently
informed about the condi-
tion.
Parents of Canavan's vic-
tims generally report becom-
ing concerned about their in-
fants' slow development
around 3 to 6 months of age,
according to foundation in-
formation.
Though varied, the most
obvious symptoms are lack
of head control, rapidly in-
creasing head cir-
cumference, reduced visual
responsiveness and abnor-
mal muscle tone, all of which
can be signs of a great varie-
ty of conditions.
Simple testing for the
disease has only recently
become available.
Those interested in more
information or making a
contribution should call 212-
8 7 7 3 9 4 5 or contact
Canavan Foundation, Inc. at
320 Central Park West,
Suite 19D, New York, N.Y.
10025.
-1
L
-
David Irving
Is Arrested
Toronto (JTA) — Holocaust-
denier David Irving was ar-
rested by police in Victoria,
British Columbia, after slip-
ping across the U.S. border
in defiance of a ban on his
entry to Canada.
The controversial British
historian and author of pro-
Nazi apologia was ap-
prehended in a Chinese res-
taurant decorated with
photos of Adolf Hitler, after
policy had issued a coun-
trywide warrant for his ar-
rest.
He was giving a lecture,
sponsored by a Holocaust-
denial group called the c
Canadian Free Speech
League. His talk had at-
tracted an audience of about
50, many of whom followed
Irving to police head-
quarters, singing "0
Canada" and demanding his
release.
Mr. Irving, 54, had
scheduled a two-week speak-
ing tour to similar groups in
Calgary, Alberta; and Kit-
chener, Hamilton, Toronto
and Ottawa, Ontario. But
that was before Canada's ‘=-.
immigration minister, Ber-
nard Valcourt, barred him
from entering the country.
Mr. Valcourt ruled that Ir-
ving's conviction this year in
Germany on a charge of
defaming Holocaust victims
made him inadmissible to
enter Canada.
CO