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Tay-Sachs
Dollar Fur Cl
SE FURS ARE REDUC ED e at
0 Of THESE
Continued from preceding page
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500 FURS
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FRIDAY, JANUARY 13, 1989
855-4464
Hunters Square • Farmington Hills
sister had tested positive and
it was suggested all siblings
be screened. The Millers were
told they fell into a "gray"
area and needed to be re-
tested. The second time, the
results were conclusive —
both Gary and Bobbie were
carriers.
"When we found out says
Gary, "I started falling
through the floor. I went
home from work, told my wife
and we both cried."
Like the Browns, the
Millers also went through ex-
tensive genetic testing and
were told they could still have
a family. "We had been mar-
ried four years and had only
just started talking about
having children," Gary
recalls. "Dr. Weiss (at Henry
Ford) said, 'You can still have
children. You have to unders-
tand your situation is rare as
rare can be: It didn't take us
long before we knew what to
do. We told him, "When we're
ready, we'll call you."
There was no question that
the Millers wanted a family.
In 1975, Bobbie became preg-
nant, an amniocentesis was
performed and the Millers
anxiously waited. When the
test results were negative for
Tay-Sachs, the Millers were
elated.
Their son Jason was born in
July 1976. Four years later,
Bobbie suffered a miscar-
riage. "In our minds, we felt
the miscarriage must have
been a Tay-Sachs baby," she
says.
But nature dealt them a
blow. With the next pregnan-
cy, amniocentesis showed a
Tay-Sachs affected fetus and
the Millers had to face the
harsh reality of terminating
the pregnancy. Neither Gary
nor Bobbie will discuss the
procedure. Bobbie had to
abort in her 22nd week of
pregnancy. The baby had to
be delivered stillborn, as was
the case for Sandy Brown's
abortions.
The experience didn't
dampen the Millers' desire to
have another child. "You look
forward to having a baby,"
says Bobbie. "You think
positively. You don't think
about the negative or you'd
never go through with it." In
February 1983, Bobbie gave
birth to another healthy baby
boy.
The Millers feel that while
their Tay-Sachs ordeal was a
dark time in their lives, it
couldn't possibly compare
with a couple who have had a
Tay-Sachs child. "We feel like
the luckiest people," says
Gary. "Just think, if my sister
hadn't been tested, we
would've had Jason, the
miscarriage and then we
would have had a very tragic
Terri Yerman suffered a Tay-Sachs
tragedy.
experience."
With improved technology,
doctors can now determine
earlier if a fetus is affected by
Thy-Sachs. Between the ninth
and 12th weeks of pregnancy,
a procedure called Chorionic
Villus Sampling is done.
That's compared to 14-18
weeks of pregnancy with
amniocentesis.
Dr. Mark I. Evans, director
of reproductive genetics at
Hutzel Hospital says with
CVS, which has only been
available in Detroit for four
years, test results can be pro-
cessed more quickly than
with amniocentesis. It can
take two days to a week to get
CVS results, and an average
of two weeks for an amnio
result.
All of those whose lives
have been inexorably im-
pacted by Tay-Sachs, agree on
one-thing: get tested. Know-
ing the truth about your
genetic legacy is essential.
Says Bobbie Miller: "We, as a
couple, made the decisions.
You have to have the
knowledge in order to make
the decision."
And in spite of the pain,
turmoil, and disappointment,
none of them regret the deci-
sions that gave them happy,
healthy children. ❑
I NEWS 1'1'
Peres Plan
Faces Fight
Jerusalem (JTA) — Finance
Minister Shimon Peres'
economic austerity program
won few friends in either the
public or private sectors after
its approval by the Cabinet
late last week. It now faces an
uphill fight in the Knesset.
Knesset Laborites accused
the plan of favoring the rich
over the poor, and in-