Center Opens New Horizons to Retarded -But Need for Jobs, Home Clouds Future By CHARLOTTE DUBIN Roberta is like any normal teen-ager. Home from a Jewish Center club meeting, she extends a breezy "Hi, Daddy-o" before padding stocking-footed to her room for an evening of phone calls and Beatles records— all of whose songs she knows by heart. Everyteen. But Roberta is no teen. She is 26 years old—one of the "lucky" ones among the mentally deficient of the Jewish community. Roberta—whose brain damage kept her in "special B" school courses till she was graduated from Ford High at age 21 —is lucky because loving parents and brother helped her fulfill some potential for achieve- ment, lucky because in their comfortable Southfield home there is room for her, and lucky because—though she earns but 80 cents an hour at the Jewish Vocational Service Sheltered Workshop—she has a job that can give her some pride of self. "We've all learned from her," said her brother, 23. "It's been a growing-up process for all of us." Others are not so fortunate. Ernie, 45, was in an institution for 20 years before being released to a state family care home on West Grand Blvd., where he lives with 30 other men, two of them Jews. His elderly mother could not care for him, and, since he can't work, Ernie's sole support is state aid. An overprotective mother kept Margaret safe at home—too safe. To Margaret, in her middle 40s, the world outside their door was an unknown. When his wife died, Margaret's father started taking her to the Jewish Cen- ter for some socializing. Slowly, she began to make contact with reality. But within a year, her father died, and Margaret was placed in a state family care home near Tiger Stadium. She was lost to the Jewish community. What Roberta and Ernie have going for them may be that vital contact that Mar- garet lost. Thursday evenings, Roberta and Ernie take buses to the Jewish Center to participate in a unique nine-year-old pro- gram that the Center considers one of its proudest achievements. Some 65 persons with varying degrees of retardation are involved in the Center proj- ect: Israel Boys and Israel Girls (age 18-30) and Detroiters, a coed group whose mem- bers range in age from 30 to 55. In addition, two years ago the Center initiated a fourth group, the Lions, for teen- agers with problems—physical and/or emo- tional difficulties, a need for social adjust- ment, most just slow learners. In the Jewish community, which places a high premium on intellect, the retarded have not had an easy time of it. And it has shown in the hesitation of parents to admit publicly that a problem exists. Even as the general community's atti- tudes toward mental disabilities began to change, and as new developments in treat- ment and rehabilitation evolved, the Jewish community barely moved. A notable excep- tion has been the lounge program sponsored by the Detroit Section, National Council of Jewish Women, in which former mental patients are helped to adjust to an everyday world. (Council also sponsors Orchards, a residence facility for emotionally disturbed boys.) But considering the number of disturbed persons, Jews among the m, scattered throughout the city in woefully substandard conditions, what the NCJW has done is a drop in the bucket. The 175-member Parents Association for Jewish Residential Care, formed by the par- ents of participants in the Center program, believes there are at least 200 Jewish re- tarded over age 18 within the community who need help and "probably a good many more who would seek help if they knew it was available." In a study of its own two years ago, the Jewish Family and Children's Service esti- mated that in all of Michigan there were perhaps 1,528 Jews with some degree of retardation. An idea of the problem was conveyed managed to absorb their retarded into the community without benefit of institutions, yet "Once a Jewish patient is released from a Michigan state hospital, there's no place for him to go." (Europe, not the United States, has led the way in providing model facilities for care of the retarded. It has been easier to experiment with new concepts there, for it is a gruesome fact that few retarded over age 25 survived in European countries taken over by Hitler.) Advances within the Jewish comb unity, albeit slow and hard-won, have come .never- theless. Roberta's mother recalls: "Eleven years ago, our daughter had no social contact at all. She would come home from school and spend the rest of the day in her room. One day, I was told that Temple Israel had a Sunday school class for the retarded, and we immediately enrolled her. It was the happiest day of her life." Temple Israel continues this service. And the 10 members of Roberta's class went on to form the nucleus of a program at the Jewish Center. It was at their parents' request, and the urging of a local organization, North- west Child Rescue Women, that the Cen- ter agreed, with some reluctance, to serv- ice the retarded. Who could know what effect their presence might have at the Center? Would they misbehave? Would they upset other members? The Center decided to take a gamble. Assured the financial cooperation of Northwest Child Rescue, the Center agreed to take the first step with 15 members age 14-20. They were called the Special Young Adult Group. Later, reflecting on the connotation of "Special," the staff decided the name must go. The young people, who had just learned about Israel, voted to link their name with the Jewish State. Israel Boys and Israel Girls were born. The gamble paid off. Today, the young adults' presence every Thursday evening is as much a part of the Center scene as the health club or children's dance classes. Dinner in the snack bar is a jubilant—some- times noisy—gathering, and several mem- bers take buses straight from work to be there. The program has been blessed with loyal staff. Allen Gelfond, director of the group services division, Sharon Alterman and Cheryl Guyer, staff advisers, have watched the members go through their first faltering steps, guided them into self-assurance and now can watch from the sidelines as the young adults conduct their own meetings, plan their own projects, raise funds for their trips. Volunteers also make the program work, the newest team of helpers being a group from Beth Shalom United Synagogue Youth. An important adjunct to the program, reme- dial reading for the younger participants, is taught by another volunteer, Leonard Each- miel. No two members have similar case histories. As Gelfond pointed out: "Labels are dangerous. Retardation takes in many categories." Some members have emo- Tamarack to five days and then, the big experiment: a trip to Toronto in 1966. "Staying in a hotel was the most fantas- tic experience for these kids," Mrs. Alter- man recalled. "They went wild over the telephones, and to think that someone actually came in to make the beds!" The experiment has been repeated each year—to Washington, to New York by jet, to Chicago last Thanksgiving. The group's ultimate dream is a trip to Israel. Those who can afford it, pay. Those who can afford nothing pay nothing. To finance the trips, the group sells candy, Hanuka candles, New Year cards. And quietly in the background is Northwest Child Rescue Women, subsidizing the pro- gram. Now, the young adults have added a new dimension to their socialization with the formation of a Bnai Brith chapter called Ben-Gurions. The group meets on weekends, holds car washes, bay rides and activities that differ little from projects of other Bnai Brith youth groups. From a purely social beginning, the Center program has expanded into other areas. Besides remedial reading, there is physical education for the boys, to develop better coordination; sex educatio n— a concern for any parent and even more so for those of the retarded—is being handled with the cooperation of a Sinai Hospital physician. At the core of the Center service, though, is the one factor that unites the member- ship in a way that no state-run, county- sponsored or federally-funded project can achieve: Jewishness. For Roberta, from a Jewishly oriented home, and for Ernie, from a religiously barren institutional back- ground, being with other Jews, celebrating Jewish holidays, feeling they are part of the Jewish community, is virtually a gift of life. Because it considers the community to be vital to the Jewish retardate, and because it feels the Jewish community must "take care of its own," the Parents' Association for Jewish Residential Care is petitioning the Jewish Welfare Federation to assume greater support of their needs. Their first concern—first because they feel it is more easily attainable and be- cause it is a necessary adjunct to the second concern—is jobs. Currently, half of the young adult members are employed in a variety of sheltered situations, a few trained and employed by the Jewish Vo- cational Service, a Federation agency, others (the lower-level retarded) by the Detroit Association for Retarded Children, some placed in outside jobs by New Horizons, the Oakland County workshop for handicaped. In a presentation to the Jewish Vocation- al Service, seeking extended workshop training for the Jewish retarded, the Par- ents' Association explained what it feels to be the need: "The mentally retarded individual more often than not simply cannot function in a normal job situation. His reactions may be too slow, his fingers too clumsy, his physi- cal endurance to short, and his mental capacity too limited for him ever to be able to compete with other workers — even in places like Goodwill Industries or the League for the Handicaped. . . . What re- tarded people need more than anything else is to be kept busy, even though they may never be able to `produce' on a par with non-retarded workers." The association stresses that the retarded can work at a variety of tasks — "assign- ments which others might reject as too monotonous, too poorly paid, or too un- rewarding." In seeking "a place where retarded peo- ple can learn vocational skills and then apply them," the association points out that any such vocational program must have the "commitment to helping these individuals on a continuing basis . - . the commitment to taking on a client group who might never be 'cured,' who might never cease needing our help." tional disabilities, others mental. Some function well in society, others cannot. But as a cohesive social unit, the Center "community" of retarded is an astounding success. "This program is not clinically oriented," said Gelfond. "We assess the individual from an interview with him and his parents. The two characteristics we look for are: Is he socially deprived? and Can he function within the group? If we see someone who really wouldn't be able to handle the rules, we don't take him." The Center service remains unique. Mrs. Alterman said the staff has visited compar- able groups, but there is no other in the state that services young adults. As for Jewish groups in the U.S., few if any have such complete Center support nor as much freedom in programing. It is this long-term commitment that "Our tripping program began with a recently when a young man asked The weekend at Camp Tamarack in winter and has caused some hesitation in JVS circles. Jewish News to publish an appeal for summer," Mrs. Alterman said. "It was a The hesitation has carried over into the Jewish foster parents to care for his 17- beautiful experience: their first time away area of the Parents' Association's second, year-old friend who was being released from home as adults. Some parents were and ultimate, concern: a residential facil- from a state hospital. There was no re- very protective. They sent notes, like 'Be ity for the retarded. Just what does this commitment mean? sponse to the appeal. sure his coat is buttoned.' For some of our Rabbi Solomon Gruskin, chaplain at people, who had gone through earlier, un- For Roberta's parents, now in midle age, it Northville and Wayne County General (men. happy camp experiences, it was a new means a home for their daughter when they are gone. tal patients), Lapeer and Plymouth (retard- world." it—that Roberta would ever be in his care, even after he married. They came to the conclusion, however, that the solution was no solution at all. As devoted as brother is to sister, he cannot build his future life around her. "Most knowledgeable parents many years ago started commitment procedures at a state hospital," said Mrs. Alterman. "Each year, they would call the hospital and ask for a 'retainer,' a request to keep the name of their child on the active list. Should any- thing happen to the parents, the child would be admitted. "According to a new law, however, par- ents must pay for 15 years of hospital care, or until the child is 21," she said. "Since this law came into effect, institutions rarely take someone over 21." Parents were thrown into panic by an- nouncement of the change in policy. What would happen to their over-21 children, now at home, should they become state wards? The answer would be a state family care home. No answer at all. Roberta's parents, like other parents of the retarded, have grabbed at every straw. In Israel, they found what they consider to be the model residential fad'. ity, a 20-room home for young people age 18-30. Yet, in Michigan, "I visited Plym- outh State Home and Training School, which is considered an excellent institu- tion of its kind. I was sick for two weeks afterward. How could I let my daughter live there? There's no way of getting around the fact that it is an institution. And the foster homes are even worse." Mrs. Moe Mitteldorf, treasurer of the Parents' Association, said that leaders in the field of mental retardation are agreed that institutions should be left to the severe- ly retarded. The growing trend, she said, Is toward residential care. She and other officers of the association, led by pharmacist Harry Berlin, have been waging a nonstop battle. They have virtu- ally crosscrossed the country seeking out programs that would provide the pilot for a home. They have found several facilities, but none yet that is Jewish Federation- sponsored. On one point they are adamant: it must be a Jewish home. Federation is not convinced that it is the agency to do the job. Representatives from several Federation agencies, including the Jewish Center, JVS and Federation itself, have been meeting as an informal study committee on the problem. While admitting to the success of the Center program and the unmet needs of the retarded, Alan Kandel, Federation director of social planning, said there was no precedent for a Jewish com- munity-sponsored residence. "The time- honored belief that Jews take care of their own is not valid," he said. "We do not pro- vide a full range of services, such as long- term psychiatric care." He contends that the parents are not sure exactly what they want, or need. "From our side of it, an institution that would run seven days a week, at costs the parents haven't reckoned with, would rep- resent an astronomical investment. "The problems in administering a pro- gram such as the Orchards are formidable. It's more than just a housekeeping situa- tion; it requires a high order of talent to run it. "No community is going to take the re- sponsibility of such a project without some kind of supervision," he added. "I like the spirit that motivates the Par- ents' Association, but I have to be careful not to overpromise," said Kandel. "And at this time, there's nothing I'm prepared to promise." The Parents' Association, conceding that a formal study of the need is yet to be made and that costs are yet to be figured, is nevertheless convinced that Federation must support their project. Said one supporter from the Center staff: "There is unequivocally a need for a home Those who grew up with their families, in a Jewish environment, function like Jews— not at all like those who were institution- alized as children." The parents cite precedents, although not under Jewish auspices—such as the six-bed residence opened by the Dearborn Associa- tion for Retarded Children — and claim others are springing up all over the country, some under church auspices. In Milwaukee, the National Council of 'Jewish Women and the Sheltered Workshop are uniting efforts At one time, their answer to the question for a home. ed) state hospitals, said Jews in Europe The program grew from two days at was their son, three years younger than The parents assert that Federation has 48 Friday, February 13, 1970 Roberta. They taught him—and be accepted THE DETROIT JEWISH NEWS (Continued on Page 46) —